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respite & retreat

KPS Trebullom Closure

Kernow Positive Support (KPS) Sadly, Kernow Positive Support announces the closure of our National Residential Retreat, Respite, Education and Training Centre on 30th September 2016. KPS Trebullom also supplied a temporary accommodation solution for those within the Southwest peninsula with housing related needs  KPS Trebullom was the first facility of its kind in the UK. Through our work with people with HIV we had recognised a need, not only for people to have the opportunity to come to terms with this debilitating illness by attending a respite and retreat centre, there was and still is a need to improve HIV awareness through training opportunities to the public and professionals alike, we were proud to give over 2,000 individuals respite and retreat, providing over 25 individuals with short and long-term emergency accommodation during the five and a half years Trebullom operated. Also, we were able to give a vast array of the members of the public, professionals and other individuals access to HIV Awareness Training as well as maintaining our HIV Awareness to schools and colleges throughout the county.

The three year development project KPS Trebullom was opened on 18th April 2011, after receiving a government grant to provide this facility. However, after the change of government, and shortly after opening the project, funding was cut by local councils who had previously provided those living with HIV respite and retreat opportunities. With the continuing austerity measures imposed by the government to the voluntary and statutory sector, funding resources became extremely challenging. In part, due to the changing needs of people living with HIV, and priority given to medication advancements and prevention. As people were living longer with medical advances, there was a general feeling that respite was an unnecessary luxury in times of limited funding and the ongoing cut-backs.

Naturally, KPS was extremely worried regarding the sustainability of KPS Trebullom. The cut-backs had an impact on KPS Trebullom's first year of operation. However, 2012 saw KPS winning a three year grant from the Big Lottery; to provide, workshops, retreat and training (Enabling Futures), this grant was able to help maintain our stability, and gave the project a well needed boost of confidence, that would give momentum and help to sustain the project beyond its original three year development. Although, we were able to sustain the facility 18 months beyond the 'Enabling Futures' project, the continuation of government cut-backs and additional limited funding for respite through charitable trusts and other HIV Support charities, month by month sustainability was becoming more difficult. Since the foundation of KPS Trebullom the KPS Trustees, staff and volunteers have attempted to obtain additional funding, and looked at every other avenue to continue the project, but sadly to no avail. For further details and a 'Press Release' will be made available shortly.

Charities that have provided specialised respite had always proven to provide a slightly cheaper alternative to the statutory health care system, by the very nature of utilising volunteers and keeping paid-staff to an absolute minimum, yet providing a service with professionalism, empathy and an understanding of the important issues concerning HIV. To this end, KPS attempted to compliment services already available at a cost-effective level that was and still remains unavailable within the UK.

What is Respite Care?

Respite care is a care arrangement that is different from the day-to-day situation. Respite care can mean a change in either the care setting or the people who provide care services. Respite gives a break, both to the person receiving care and person(s) providing support, in the home or community care setting. The social services, social work departments, health care service providers, or family and friends can arrange respite care. Either the person providing or receiving care may be able to go to another place. The person receiving care may find it stimulating to go somewhere else. On the other hand, the person providing care may enjoy staying in another place.

Respite can take place for a number of weeks, a weekend, or at night-times. Arrangements vary according to personal needs and local policy. This form of care may be provided either in, a local care home or in another county. Respite care can be used so that people can enjoy being with others' in a similar situation. Respite can also give someone a totally different environment and landscape from home. The social services department or health care provider may pay for all or some of the Respite Care costs.

Alternatively, you may need to pay some or all of the costs. This break is a benefit to all people involved in the care environment. Consider the needs and wishes of everyone when making arrangements. Carers and people receiving care can receive vouchers for short term' respite breaks. Local authorities can provide vouchers. Respite vouchers provide more freedom to choose when and where to take a break. Tell the care manager a couple of months before respite is needed. This is especially important when respite is planned to last longer than a week.

Taking a break from caring.

As a carer, you or the person whom you care for, may be entitled to a break or rest from caring. Your social worker or primary care trust may help to arrange this. Respite care may allow the tasks that you normally carry out for this person to be undertaken by someone else. There are a number of grant giving trusts or local support charities that may help to find funding for respite. For further details, contact your local Clinic or support group. Please note that increasing the length of respite care beyond what was originally agreed may be costly. Get the agreement in writing, even when a care manager arranges a rate and dates of respite. The Respite Care Centre may increase the price for the additional care. The Respite Care Centres may also charge for other costs. Assume nothing. Agree the rates with the care home manager before extending the respite stay. Get the agreement in writing, including the services and costs that are included in your agreement. You can visit the Social Services Inspectorate Standards Website for Joint Review Standards and Criteria at or ask your local support group for a copy of these standards, to assess community performance in providing short breaks.

Am I entitled to free Respite Care?

The NHS may provide and arrange your respite free of charge when you are in need, that provides a break from caring, rehabilitation to help a person re-gain their independence, or recovery from an illness, an operation, or bereavement. Also those who need a change of environment due to their condition qualify. Social services and NHS care providers agree how they will meet local needs. They set their rules according to their resources and Department of Health guide lines. Each local NHS service provider has its own set of rules for  providing free respite care. Ask for information about eligibility criteria for services and funding. Ask your named nurse or care manager for their leaflets. They should explain how your situation meets the criteria for services and help with paying for respite. You may be dissatisfied with the result of the assessment of your eligibility if this is the case you may request an independent review to have the decision reassessed.

What are eligibility criteria?

Eligibility criteria are the guidelines which social services or NHS use to assess your eligibility to receive  services or funding. By using these criteria, service providers can ensure that they use their money to help those people most in need. People most in need are called 'at risk'. Every local and health authority is required to publish papers that describe the eligibility criteria they apply. If they consider you eligible to receive help the authority may apply additional criteria. These may limit the amount of care or funding that you receive. Most of these guidelines are reviewed annually. Local service providers work together to set eligibility criteria this involves health authority and social  services providers.

Where can I find out about local criteria deciding who can receive services?

Every social services department and health care service provider is required to publish documents describing local criteria or priorities. Ask your care manager or social worker for the leaflets. Ask them to explain how your situation fits the criteria before making care decisions. You have the right to ask for an independent review of how they applied their criteria if you do not agree with their decision.

Who can I turn to, if I am still not satisfied with this decision and its criteria?

You can contact your local support group, who may be able to give you further advice and maybe able to advocate on your behalf. You have the right to ask you local MP to look at your individual case. You may wish to write to a government official whose main ministerial responsibilities are within the issues and services you are concerned about.




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